Frequently Asked Questions

Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders that affect the body's collagen, the protein that provides structure and elasticity to skin, ligaments, blood vessels, and organs. The most common symptoms of EDS include chronic widespread pain, extreme fatigue, stretchy skin, joint hypermobility and instability, as well as bruising and poor wound healing. There are also many possible co-occurring symptoms from POTS (Dysautonomia) to GI Issues.

At OOF!, Ehlers-Danlos Syndrome awareness is close to our hearts. Our founders have personal experiences with EDS and are committed to raising awareness, supporting the Ehlers-Danlos community, and advocating for better understanding. We believe in fostering a community of strength and compassion for those affected by EDS. Our support group, the OOF! Spoonie Squad on Facebook, provides encouragement and a place to ask questions or vent for anyone living with chronic illness.

We integrate EDS awareness into everything we do—from sharing educational content and resources on our platforms to supporting organizations like the Ehlers-Danlos Society.

You can visit the Ehlers-Danlos Society’s website for more information, or check out our blog and social media, where we share stories, resources, and tips for navigating life with EDS. Our Facebook Group, OOF! Spoonie Squad for anyone living with Ehlers-Danlos Syndrome (EDS) or ANY chronic illness or pain for support, laughs, advice, and encouragement.