Our
EDS Mission
Why OOF! is about more than hair.
Created by a mother and daughter team living with Ehlers-Danlos Syndrome.
Our Story
Hi, we're Ella and Annaleise.
For years, our symptoms just didn't make sense. Joint pain, subluxations, extreme fatigue, injuries, dizziness, and so many "weird" things that just didn't add up.
Ella faced severe nervous system issues before finally being diagnosed with EDS.
Annaleise was diagnosed at 49 after decades of being dismissed.
That experience changes you. And that is why our mission matters so much to us.
Our Journey
A long road to answers. Hope for all.
For Years
Symptoms that didn't make sense. Misdiagnosed, dismissed, and not believed.
Ella's Diagnosis
Severe POTS complications led to answers. Everything started to click.
Anna's Diagnosis
At 49, after decades of being told that it was all in her head because they could find nothing wrong.
Today
We use our story to raise awareness, support education and help others to feel seen.
What is
Ehlers-Danlos Syndrome?
Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders that affect the body's collagen.
This is the protein that provides structure and elasticity to skin, ligaments, blood vessels, and organs.
Affects Collagen
Chronic Pain + Fatigue
Joint Issues + Pain
Everyone is Different
Ehlers-Danlos Syndrome
affects people differently.
Pain, Anxiety, Migraines
Gastrointestinal
Issues
Chronic
Fatigue
Low BP
Heart Palpitations
Dizziness
Fainting
Bruising
Easily
Joint
Instability
Mast Cell
Disorders
How OOF! supports
the EDS community.
OOF! was started by a mother-daughter team living with EDS, so this mission is personal.
OOF! Spoonie Squad
Awareness
Sharing information and education about EDS, chronic pain and related conditions.
Community
Supporting organizations like the Ehlers-Danlos Society with awareness.
Ehlers-Danlos Syndrome resources.
OOF!
life can be hard.
We want to make it
beautiful.
with love,
Ella &
Annaleise
As a brand created by women living with EDS, OOF! exists as both a business and a mission.
We’re here to simplify beauty routines and empower confidence.
Thank you for taking the time to learn about Ehlers-Danlos Syndrome.